to many things in my mind.
Yesterday my brother sends me an email in where he says that there is a breakthrough in the development for curing braintumors. This research is done by a children oncologist and Panormitis neurosurgeon Dr. P. Witthamer from the VU in Amsterdam. It has to do with enzymes and it will take a few years to complete this research. For patients of today it will be too late, it said in the news. Ofcourse we keep hoping he will make it. Nevertheless it kept me from sleeping all night long and I must admit that I cried a lot. I will contact Dr. Witthamer and ask if Panormitis would be able to participate in a clinical trial in this field .....???
The photoshow is a great succes, but I feel strange when a photo is bought, as I know the stories behind each one of them. They became a bit like " our babies" in one way. He is very happy to be in the middle of this all, meeting relatives, friends and making new ones as well. He is receiving all the good words and compliments about his work and that gives him surely courage. If time let us, we hope with the money raised we can maybe realize to do a show in Holland or anywhere else. If any one of you know his photographs and can help me setting up a show and has the knowhow, please contact me.
I left him in George's Place " on his own ", meaning one of the very rare times that I am not next to him. It feels a bit strange, but I need a bit of time for myself as well. I have " a million " things to organize before we leave Patmos again.
This Tuesday we will have a little private church service in his family church in Kambos at 07.00 in the morning Greek time. It would be wonderful when you people could help us by sending positive thoughts out to him at the same time. It might help, you know!!! Lots of love,
Panormtis, Sophia, Hetty
Sunday 19 September 2010
Tuesday 7 September 2010
back in Patmos
How fast times go by??? We arrived in Patmos about ten days ago. The whole plan has changed again, because the oncologist advised to do the six months of chemo near a hospital. They are going to give him nearly a double dose of chemo in the coming months, for that reason they want to follow up his progress from close. I feel at one point relieved that we are going to stay in Holland during this therapy, but at the other hand it is quite difficult looking at the psychological part.
He is so happy here and it is so easy for him to leave the house and immediately finding his friends and beloved ones. Since we came here we have not been able to spend one night in the house!! As in Holland I would spend a lot of effort to get him out of the house. We get up every morning around 08.00 o' clock, go out to a beach and swim for 20 minutes or so, then home for breakfast and at 12.00 we have his daily masseur at our home to massage him for a good hour. This is an offer of Susan and Benetos and we highly appreciate this, he really enjoys it and relaxes during and after the massage. After lunch we take a little nap and go out again in the early evening. We have been going to the Music Festival a few times, I think tonight is the last night, which we also enjoyed a lot. Outside of the Apocalyps in the little amphitheater, a beautiful scenery when you look at Skala below.
As soon as we decided, after the meeting with the oncologist, we would be spending the winter in Holland I had to run after finding a good school for Sophia. As now it is not an option anymore to leave her as the only member of the family alone behind in Patmos!! At first she did not wanted to go at all, but now she realizes that it is better for all of us when we would be close to each other. I did not try to convince her with a lot of words, just told her that we would be needing her around us.
After two days she asked me the name of the school and found their website. it is a very interesting school, bilingual ( half Dutch half English ) and it approaches her profile quite a bit. Her being interested in art, handcraft,music, social life, drama etc. they spend a fair time to these subjects. It will not be easy for her as we will be facing a difficult winter, so I decided to put her back one grade, meaning she will be doing the second class again. Anyhow, she will need some time to adjust to the new school system and the dutch way of living in general, not to forget the weather!! We hope she is going to like it and will soon make some friends in Holland. Good luck my sweet Sophia!!
Daphne left Patmos last Tuesday and is now in the UWC in Maastricht. She is totally absorbed by all the new faces and impressions. She is one of the 50 boarders, coming from 47 different countries. She has been "meeting" most of them on Face book and emailing and now finally got to meet them. They all got a new bike with the logo of the school and biked to Belgium last weekend as an introduction weekend to get to know each other better. If I am not mistaking, school has started from today. As Sophia, we wish also the best of luck for Daphne.
Besides being busy by driving Panormitis around, spending wonderful time with him, I also am trying to organize a small exhibition with his photographs. It is a lot of work and I hope that I will be able to realize this idea. Wish me luck!!
that's it for now, dear friends, I will have some more time free at the end of next week ( I hope ) and will post you then.
lots of love and kisses
He is so happy here and it is so easy for him to leave the house and immediately finding his friends and beloved ones. Since we came here we have not been able to spend one night in the house!! As in Holland I would spend a lot of effort to get him out of the house. We get up every morning around 08.00 o' clock, go out to a beach and swim for 20 minutes or so, then home for breakfast and at 12.00 we have his daily masseur at our home to massage him for a good hour. This is an offer of Susan and Benetos and we highly appreciate this, he really enjoys it and relaxes during and after the massage. After lunch we take a little nap and go out again in the early evening. We have been going to the Music Festival a few times, I think tonight is the last night, which we also enjoyed a lot. Outside of the Apocalyps in the little amphitheater, a beautiful scenery when you look at Skala below.
As soon as we decided, after the meeting with the oncologist, we would be spending the winter in Holland I had to run after finding a good school for Sophia. As now it is not an option anymore to leave her as the only member of the family alone behind in Patmos!! At first she did not wanted to go at all, but now she realizes that it is better for all of us when we would be close to each other. I did not try to convince her with a lot of words, just told her that we would be needing her around us.
After two days she asked me the name of the school and found their website. it is a very interesting school, bilingual ( half Dutch half English ) and it approaches her profile quite a bit. Her being interested in art, handcraft,music, social life, drama etc. they spend a fair time to these subjects. It will not be easy for her as we will be facing a difficult winter, so I decided to put her back one grade, meaning she will be doing the second class again. Anyhow, she will need some time to adjust to the new school system and the dutch way of living in general, not to forget the weather!! We hope she is going to like it and will soon make some friends in Holland. Good luck my sweet Sophia!!
Daphne left Patmos last Tuesday and is now in the UWC in Maastricht. She is totally absorbed by all the new faces and impressions. She is one of the 50 boarders, coming from 47 different countries. She has been "meeting" most of them on Face book and emailing and now finally got to meet them. They all got a new bike with the logo of the school and biked to Belgium last weekend as an introduction weekend to get to know each other better. If I am not mistaking, school has started from today. As Sophia, we wish also the best of luck for Daphne.
Besides being busy by driving Panormitis around, spending wonderful time with him, I also am trying to organize a small exhibition with his photographs. It is a lot of work and I hope that I will be able to realize this idea. Wish me luck!!
that's it for now, dear friends, I will have some more time free at the end of next week ( I hope ) and will post you then.
lots of love and kisses
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